Reference
Resources & Sources
Every statistic and fact in The Dependency Series comes from the organization that published it. This page gathers all 115 sources cited across our white papers, articles, and guides, grouped by topic, so families, professionals, and researchers can go straight to the original material.
Long-Term Care Planning, Costs & Coverage
Government, research, and consumer guides on long-term care risk, costs, Medicare and Medicaid rules, and insurance.
- NAIC — A Shopper's Guide to Long-Term Care Insurance content.naic.org Cited in: Organic Brain Syndrome & Long-Term Care, ADL & Long-Term Care Glossary, FAQ
- CareScout 2025 Cost of Care Survey carescout.com Cited in: One Fall Can Change Everything, Caregiver Load Check-In, ADL & Long-Term Care Glossary, You're Suddenly in Charge. Now What?, The Dependency Series, The Series — All 12 White Papers, FAQ
- HHS/ASPE — What Is the Lifetime Risk of Needing and Receiving Long-Term Services and Supports? aspe.hhs.gov Cited in: Caregiver Load Check-In, ADL & Long-Term Care Glossary, You're Suddenly in Charge. Now What?, The Dependency Series, The Series — All 12 White Papers, FAQ
- HHS Administration for Community Living — What Is Long-Term Care? acl.gov Cited in: ADL & Long-Term Care Glossary, You're Suddenly in Charge. Now What?
- Medicare.gov — Long-term care coverage medicare.gov Cited in: ADL & Long-Term Care Glossary, You're Suddenly in Charge. Now What?, FAQ
- Medicaid.gov — Long Term Services & Supports medicaid.gov Cited in: ADL & Long-Term Care Glossary, FAQ
- National Institute on Aging — Long-Term Care nia.nih.gov Cited in: ADL & Long-Term Care Glossary
- Eldercare Locator (Administration for Community Living) eldercare.acl.gov Cited in: You're Suddenly in Charge. Now What?
Family Caregiving
Research and support for family caregivers.
- Family Caregiver Alliance caregiver.org Cited in: Caregiver Load Check-In
- National Alliance for Caregiving — Caregiving in the U.S. caregiving.org Cited in: Caregiver Load Check-In, The Dependency Series
- AARP Public Policy Institute — Caregiving in the United States aarp.org Cited in: Caregiver Load Check-In
Organic Brain Syndrome & Memory
Sources cited on the condition page and related articles. Read the white paper →
- CDC — Subjective Cognitive Decline cdc.gov Cited in: Organic Brain Syndrome & Long-Term Care
- Alzheimer's Association — Mild Cognitive Impairment alz.org Cited in: Organic Brain Syndrome & Long-Term Care
- Alzheimer's Association — 10 Early Signs and Symptoms alz.org Cited in: Organic Brain Syndrome & Long-Term Care, Mom Can't Find Her Keys Again
- Medicare.gov — Cognitive Assessment & Care Plan Services medicare.gov Cited in: Organic Brain Syndrome & Long-Term Care
- Alzheimer's Association — 2026 Alzheimer's Disease Facts and Figures alz.org Cited in: Organic Brain Syndrome & Long-Term Care, Mom Can't Find Her Keys Again, 5 Early Dementia Signs Families Miss, The Dependency Series, The Series — All 12 White Papers, FAQ
- National Institute on Aging nia.nih.gov Cited in: Organic Brain Syndrome & Long-Term Care, Mom Can't Find Her Keys Again, 5 Early Dementia Signs Families Miss
- Lewy Body Dementia Association lbda.org Cited in: Organic Brain Syndrome & Long-Term Care, 5 Early Dementia Signs Families Miss
- Alzheimer's Association — Clinical Practice Guideline for Blood-Based Biomarkers (AAIC 2025) aaic.alz.org Cited in: Alzheimer's Blood Test & APOE4 Gene
- BrightFocus Foundation — Understanding Your APOE Status: Genetics and Alzheimer's Risk brightfocus.org Cited in: Alzheimer's Blood Test & APOE4 Gene
- Roche Diagnostics — CE mark for the Elecsys ApoE4 blood test diagnostics.roche.com Cited in: Alzheimer's Blood Test & APOE4 Gene
- Xu et al. — Plasma p-tau217, APOE genotype, and timing of cognitive impairment, The Lancet Neurology (2026) doi.org Cited in: Alzheimer's Blood Test & APOE4 Gene
- Medical Xpress — Blood and gene tests predict Alzheimer's symptoms years in advance medicalxpress.com Cited in: Alzheimer's Blood Test & APOE4 Gene
- Alzheimer's Drug Discovery Foundation — AI-driven speech tools for earlier Alzheimer's detection alzdiscovery.org Cited in: Alzheimer's Blood Test & APOE4 Gene
- Association of Health Care Journalists — A simple blood test could detect Alzheimer's earlier, but Medicare doesn't cover it healthjournalism.org Cited in: Alzheimer's Blood Test & APOE4 Gene
- Roche Diagnostics — FDA clearance for Elecsys pTau217 diagnostics.roche.com Cited in: Alzheimer's Blood Test & APOE4 Gene
Stroke, CVA & Traumatic Brain Injury
Sources cited on the condition page and related articles. Read the white paper →
- NINDS — Traumatic Brain Injury ninds.nih.gov Cited in: Stroke and CVA & Long-Term Care
- CDC — TBI Data and Statistics cdc.gov Cited in: Stroke and CVA & Long-Term Care
- CDC MMWR — TBI-Related Hospitalizations, 2018 cdc.gov Cited in: Stroke and CVA & Long-Term Care
- CDC NIOSH — Traumatic Brain Injuries in Construction cdc.gov Cited in: Stroke and CVA & Long-Term Care
- CDC — TBI Signs and Symptoms cdc.gov Cited in: Stroke and CVA & Long-Term Care
- GEICO — What Is Personal Injury Protection (PIP)? geico.com Cited in: Stroke and CVA & Long-Term Care
- Missouri Division of Workers’ Compensation — Settling a Case labor.mo.gov Cited in: Stroke and CVA & Long-Term Care
- American Stroke Association stroke.org Cited in: Stroke and CVA & Long-Term Care, The First 90 Days After a Stroke
- CDC — Stroke cdc.gov Cited in: Stroke and CVA & Long-Term Care, The First 90 Days After a Stroke
- CDC — Stroke Facts cdc.gov Cited in: The Dependency Series, The Series — All 12 White Papers, FAQ
Parkinson's Disease & Tremor Disorders
Sources cited on the condition page and related articles. Read the white paper →
- JAMA — Essential Tremor Review jamanetwork.com Cited in: Parkinson's Disease & Long-Term Care
- NINDS — Tremor ninds.nih.gov Cited in: Parkinson's Disease & Long-Term Care, The Tremor He Keeps Explaining Away
- Mayo Clinic — Essential Tremor: Symptoms and Causes mayoclinic.org Cited in: Parkinson's Disease & Long-Term Care
- Mayo Clinic — Essential Tremor: Diagnosis and Treatment mayoclinic.org Cited in: Parkinson's Disease & Long-Term Care
- CMS — National Coverage Determination: Deep Brain Stimulation for Essential Tremor and Parkinson's Disease cms.gov Cited in: Parkinson's Disease & Long-Term Care
- MR-Guided Focused Ultrasound for Essential Tremor (PMC) pmc.ncbi.nlm.nih.gov Cited in: Parkinson's Disease & Long-Term Care
- Michael J. Fox Foundation — 2024 Economic Burden Report michaeljfox.org Cited in: Parkinson's Disease & Long-Term Care, The Tremor He Keeps Explaining Away
- Parkinson's Foundation parkinson.org Cited in: Parkinson's Disease & Long-Term Care
- Parkinson's Foundation — Statistics parkinson.org Cited in: The Tremor He Keeps Explaining Away, The Series — All 12 White Papers, FAQ
- npj Parkinson's Disease — Projected U.S. Economic Burden of Parkinson's pmc.ncbi.nlm.nih.gov Cited in: Parkinson's Disease & Long-Term Care
Falls, Fractures & Osteoporosis
Sources cited on the condition page and related articles. Read the white paper →
- NIAMS — Osteoporosis niams.nih.gov Cited in: Falls and Fractures & Long-Term Care
- CDC NCHS — Osteoporosis or Low Bone Mass in Older Adults cdc.gov Cited in: Falls and Fractures & Long-Term Care
- USPSTF — Screening for Osteoporosis (2025) uspreventiveservicestaskforce.org Cited in: Falls and Fractures & Long-Term Care
- Medicare.gov — Bone Mass Measurements medicare.gov Cited in: Falls and Fractures & Long-Term Care
- CDC STEADI Initiative cdc.gov Cited in: Falls and Fractures & Long-Term Care
- Bone Health & Osteoporosis Foundation bonehealthandosteoporosis.org Cited in: Falls and Fractures & Long-Term Care
- CDC — Older Adult Falls Data cdc.gov Cited in: One Fall Can Change Everything, The Dependency Series, The Series — All 12 White Papers, FAQ
- CDC STEADI — Older Adult Fall Prevention cdc.gov Cited in: One Fall Can Change Everything
Arthritis & Musculoskeletal Conditions
Sources cited on the condition page and related articles. Read the white paper →
- CDC — Arthritis Data and Statistics cdc.gov Cited in: Arthritis & Long-Term Care
- Arthritis Foundation arthritis.org Cited in: Arthritis & Long-Term Care
- CDC — Arthritis (Chronic Disease Indicators) cdc.gov Cited in: The Series — All 12 White Papers, FAQ
COPD, Emphysema & Chronic Lung Disease
Sources cited on the condition page and related articles. Read the white paper →
- NHLBI — COPD nhlbi.nih.gov Cited in: COPD and Chronic Lung Disease
- NHLBI — COPD Treatment nhlbi.nih.gov Cited in: COPD and Chronic Lung Disease
- Medicare.gov — Pulmonary Rehabilitation medicare.gov Cited in: COPD and Chronic Lung Disease
- Medicare.gov — Oxygen Equipment and Accessories medicare.gov Cited in: COPD and Chronic Lung Disease
- COPD Foundation copdfoundation.org Cited in: COPD and Chronic Lung Disease
- American Lung Association lung.org Cited in: COPD and Chronic Lung Disease
- CDC — COPD (Chronic Disease Indicators) cdc.gov Cited in: The Series — All 12 White Papers, FAQ
Diabetes: Type I & Type II
Sources cited on the condition page and related articles. Read the white paper →
- American Diabetes Association diabetes.org Cited in: Diabetes & Long-Term Care
- CDC — Diabetes Statistics cdc.gov Cited in: Diabetes & Long-Term Care
- CDC — National Diabetes Statistics Report cdc.gov Cited in: The Dependency Series, The Series — All 12 White Papers, FAQ
Cardiovascular Disease & Heart Failure
Sources cited on the condition page and related articles. Read the white paper →
- CDC — Heart Failure cdc.gov Cited in: Cardiovascular Disease & Long-Term Care
- American Heart Association — Classes and Stages of Heart Failure heart.org Cited in: Cardiovascular Disease & Long-Term Care
- Medicare.gov — Cardiac Rehabilitation medicare.gov Cited in: Cardiovascular Disease & Long-Term Care
- American Heart Association heart.org Cited in: Cardiovascular Disease & Long-Term Care
- Heart Failure Society of America hfsa.org Cited in: Cardiovascular Disease & Long-Term Care
- American Heart Association — Heart and Stroke Statistics heart.org Cited in: The Dependency Series, The Series — All 12 White Papers, FAQ
Chronic Kidney Disease & Organ Transplant
Sources cited on the condition page and related articles. Read the white paper →
- UNOS — U.S. Surpassed 48,000 Organ Transplants in 2024 unos.org Cited in: Chronic Kidney Disease & Long-Term Care
- OPTN/HRSA — Organ Transplants Exceeded 48,000 in 2024 hrsa.gov Cited in: Chronic Kidney Disease & Long-Term Care
- HRSA — 2025 National Survey of Organ Donation Report (waiting list) data.hrsa.gov Cited in: Chronic Kidney Disease & Long-Term Care
- NIDDK — Kidney Transplant niddk.nih.gov Cited in: Chronic Kidney Disease & Long-Term Care
- Medicare.gov — Organ Transplants medicare.gov Cited in: Chronic Kidney Disease & Long-Term Care
- Medicare.gov — Kidney Transplants medicare.gov Cited in: Chronic Kidney Disease & Long-Term Care
- CMS — Medicare Part B Immunosuppressive Drug Benefit cms.gov Cited in: Chronic Kidney Disease & Long-Term Care
- National Kidney Foundation kidney.org Cited in: Chronic Kidney Disease & Long-Term Care
- USRDS — United States Renal Data System (NIDDK) niddk.nih.gov Cited in: Chronic Kidney Disease & Long-Term Care
- NIDDK — Kidney Disease Statistics for the United States niddk.nih.gov Cited in: The Series — All 12 White Papers, FAQ
Cancer
Sources cited on the condition page and related articles. Read the white paper →
- American Cancer Society — Cancer Facts & Statistics cancer.org Cited in: Cancer & Long-Term Care, The Series — All 12 White Papers, FAQ
- National Cancer Institute (NCI) cancer.gov Cited in: Cancer & Long-Term Care
Autoimmune Diseases, MS & Lupus
Sources cited on the condition page and related articles. Read the white paper →
- National MS Society — How Many People Have MS nationalmssociety.org Cited in: Autoimmune Diseases & Long-Term Care
- CDC — Lupus Data and Research cdc.gov Cited in: Autoimmune Diseases & Long-Term Care
- NINDS — Multiple Sclerosis ninds.nih.gov Cited in: Autoimmune Diseases & Long-Term Care
- CDC — About Lupus cdc.gov Cited in: Autoimmune Diseases & Long-Term Care
- AALTCI — Long-Term Care Insurance Consumer Information Center (health qualification) aaltci.org Cited in: Autoimmune Diseases & Long-Term Care
- National Multiple Sclerosis Society nationalmssociety.org Cited in: Autoimmune Diseases & Long-Term Care, The Series — All 12 White Papers, FAQ
- Autoimmune Association autoimmune.org Cited in: Autoimmune Diseases & Long-Term Care, FAQ
Vision Loss, Macular Degeneration & Hearing Loss
Sources cited on the condition page and related articles. Read the white paper →
- CDC — Prevalence of Age-Related Macular Degeneration cdc.gov Cited in: Vision and Hearing Loss & Long-Term Care
- NIH National Eye Institute — Age-Related Macular Degeneration nei.nih.gov Cited in: Vision and Hearing Loss & Long-Term Care
- NEI — FDA Approves First Drugs for Dry AMD (Geographic Atrophy) nei.nih.gov Cited in: Vision and Hearing Loss & Long-Term Care
- NEI — About AREDS and AREDS2 nei.nih.gov Cited in: Vision and Hearing Loss & Long-Term Care
- Medicare.gov — Macular Degeneration Tests & Treatment medicare.gov Cited in: Vision and Hearing Loss & Long-Term Care
- NIH National Eye Institute nei.nih.gov Cited in: Vision and Hearing Loss & Long-Term Care, FAQ
- NIDCD — Hearing Loss and Older Adults nidcd.nih.gov Cited in: Vision and Hearing Loss & Long-Term Care
- NIDCD — Quick Statistics About Hearing nidcd.nih.gov Cited in: The Series — All 12 White Papers, FAQ
Genetic Testing & Insurance
Laws, regulations, and industry data on genetic testing, Alzheimer’s biomarkers, and insurance underwriting.
- U.S. Food and Drug Administration — FDA Clears First Blood Test Used in Diagnosing Alzheimer's Disease fda.gov Cited in: Alzheimer's Blood Test & APOE4 Gene, LTC Insurance & Genetic Testing Order
- Alzheimer's Association — Statement on FDA Clearance of the Elecsys pTau217 Blood Test (August 24, 2026) alz.org Cited in: Alzheimer's Blood Test & APOE4 Gene, LTC Insurance & Genetic Testing Order
- Congress.gov — H.R. 6130, Alzheimer's Screening and Prevention Act of 2025 (ASAP Act) congress.gov Cited in: Alzheimer's Blood Test & APOE4 Gene
- National Human Genome Research Institute — Genetic Information Nondiscrimination Act (GINA) genome.gov Cited in: Alzheimer's Blood Test & APOE4 Gene
- The Scientist — Some Insurers Protected by GINA the-scientist.com Cited in: Alzheimer's Blood Test & APOE4 Gene
- National Human Genome Research Institute — Genetic Discrimination and GINA's limits genome.gov Cited in: Alzheimer's Blood Test & APOE4 Gene, LTC Insurance & Genetic Testing Order
- National Association of Insurance Commissioners — state genetic testing provisions chart (HB-50) content.naic.org Cited in: LTC Insurance & Genetic Testing Order
- actuary.info — NCOIL Life Insurance Genetic Testing Model Act, Spring 2026 draft actuary.info Cited in: LTC Insurance & Genetic Testing Order
- Minnesota Legislature — HF3701, genetic information and long-term care, life, and disability insurers track.mn Cited in: LTC Insurance & Genetic Testing Order
- LTC Shop — Alzheimer's Blood Tests and Long-Term Care Insurance ltcshop.com Cited in: LTC Insurance & Genetic Testing Order
- Nationwide — Three-minute online cognitive screening for long-term care underwriting news.nationwide.com Cited in: LTC Insurance & Genetic Testing Order
- AALTCI — Long-Term Care Insurance Decline Rates Reported (2020 Milliman survey data) aaltci.org Cited in: LTC Insurance & Genetic Testing Order
- AALTCI — 2026 Long-Term Care Insurance Price Index aaltci.org Cited in: LTC Insurance & Genetic Testing Order
- LIMRA — Hybrid Insurance on the Rise: A New Era for Long-Term Care Protection limra.com Cited in: LTC Insurance & Genetic Testing Order
- AALTCI — Probability of using long-term care insurance benefits aaltci.org Cited in: LTC Insurance & Genetic Testing Order
Links open in a new tab on the source organization’s website. Figures reflect the most recent data available when each page was published, and source organizations update on their own schedules. Links last checked: September 23, 2026. Content on this site was researched, sourced, and drafted with the assistance of Perplexity AI, with human editorial review. See our Terms of Use for how we source and verify material, and tell us if you spot an error or a broken link.